National Policy for Rare Diseases 2021

A very comprehensive National Policy for Rare Diseases 2021 has been finalized by the Ministry of Health and Family Welfare. The Rare Diseases Policy aims to:

  • Lower the high cost of treatment for rare diseases
  • Increase focus on indigenous research related to rare diseases
  • Create a national hospital based registry of rare diseases
  • Focus on early screening and prevention through primary and secondary health care infrastructure
  • Strengthen tertiary health care facilities for prevention and treatment of rare diseases through designating 8 health facilities as Centre of Excellence
  • Develop crowd funding mechanism in which corporates and individuals will be encouraged to extend financial support through a robust IT platform for treatment of rare diseases.

NATIONAL HEALTH POLICY 2017

Objectives related to reduction of disease prevalence/ incidence

  • Achieve global target of 2020 which is also termed as target of 90:90:90, for HIV/AIDS i. e. -90% of all people living with HIV know their HIV status, - 90% of all people diagnosed with HIV infection receive sustained antiretroviral therapy and 90% of all people receiving antiretroviral therapy will have viral suppression.
  • Achieve and maintain elimination status of Leprosy by 2018, Kala-Azar by 2017 and Lymphatic Filariasis in endemic pockets by 2017.
  • To achieve and maintain a cure rate of >85% in new sputum positive patients for TB and reduce incidence of new cases, to reach elimination status by 2025.
  • To reduce the prevalence of blindness to 0.25/ 1000 by 2025 and disease burden by one third from current levels.
  • To reduce premature mortality from cardiovascular diseases, cancer, diabetes or chronic respiratory diseases by 25% by 2025.

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