No Fund Allotted to Treat Rare Diseases
The Centre has admitted before the Delhi High Court on December 19, 2018 that although it stated before the court that a Rs 100-crore corpus was created for treatment of rare diseases, no such fund was ever allocated as initial corpus for treatment of life-threatening disease under the National Policy on Treatment of Rare Diseases (NPTRD).
Petition filed
- A petition on behalf of families of patients of rare diseases has sought government aid for treatment. It states that the ESI has the obligation not only under the Employees’ State Insurance Act but also Article 21 of the Constitution, which guarantees every person ....
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